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Table 1 Useful online ELSI resources, especially relevant for performing research in African populations

From: Ethical and legal implications of whole genome and whole exome sequencing in African populations

Resource

Link

H3Africa High-Level Principles on Ethics, Governance and Resource Sharing

http://h3africa.org/ethics_governance_resourcesharing.cfm

Informed Consent: Ethical Considerations for Investigators Proposing to Collect Samples for the H3Africa Program

http://h3africa.org/informedConsent.cfm

NIH National Human Genome Research Institute: Informed Consent for Genomics Research

http://www.genome.gov/27026588

NIH Office of Extramural Research: Protecting Human Research Participants Course

http://phrp.nihtraining.com/users/login.php

About the 1000 Genomes Project (Informed Consent Template)

http://www.1000genomes.org/about

Training and Resources in Research Ethics Evaluation

http://elearning.trree.org

MalariaGEN: Ethics and Governance

http://www.malariagen.net/community/ethics-governance

Southern African Society for Human Genetics: Documents and Links

http://www.sashg.org/documents.htm