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Table 4 Constant views and shifts in views within scenarios

From: The acceptability of conducting data linkage research without obtaining consent: lay people’s views and justifications

(Column A)

Scenario 1

Scenario 2

Scenario 3

Scenario 4

Consent shifts and final consent decisions

No. of participants

No. of participants

No. of participants

No. of participants

  

NDa

Db

  

a. Consent

5

4

2

3

15 (8 = OIc, 7 = OOd)

b. No consent

4

17

22

21

1

c. Consent → No consent

11

3

2

1

1

d. Consent → No consent → Consent

3

1

--

--

--

e. No consent → Consent

1

--

--

1

4 (1 = OI/3 = OO)

f. Consent → No consent → Inform of research findings

1

--

--

--

--

g. No consent → Notification of research → Inform of research findings

1

--

--

--

--

h. Consent → No consent → Notification → Consent

--

1

--

--

--

i. No consent → Notification

--

--

--

--

1

j. No consent → Consent → Notification

--

--

--

--

3

k. No consent → Consent → Notification → No consent

--

--

--

--

1

Total participants

26

26

26

26

26

  1. aND = not deceased, bD = deceased, cOI = opt in, dOO = opt out