Scenario 4 - health, Work Cover & employment data linked by researchers | |
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Consent justifications | No consent justifications |
Consent provides protection against potential impact of research (10)a | Acceptable practice because of the benefits (5) |
Access to identifiable data by researchers requires consent (9) | The findings are presented in de-identified form (3) |
Practical considerations of obtaining consent from thousands (3) | |
Consent required when researchers do the linkage (7) | Acceptable due to cost and time constraints involved when obtaining consent (2) |
Consent is required when other spheres of life (apart from health) are involved (7) | Consent lowers research participation rates (2) |
Opt-out consent would result in more participants being involved (6) | Low participation rates impact on quality of research (2) |
Consent required because of lack of separation of tasks (4) | The information is already there so it should just be used without consent (2) |
People have right to choose (4) | |
Researchers may disclose information to third party (2) | Researchers are not interested in specific cases (2) |
Someone on the research team may know the research participants (2) | Strict measures/guidelines provide protection (2) |
To ensure people are not upset/do not object (2) | Getting consent could have detrimental effect on participants (1) |
No need for consent if data linkage organisation is trustworthy (1) | |
Opt-in consent captures the people who really want to participate (2) | Researchers will not use information obtained without consent to harm participants (1) |
Having the option to consent is good (2) | |
Information belongs to people (1) | Provided that the linkage organisation was involved so that tasks are separated (1) |
People want to control their information (1) | |
Researchers using identifiable information without consent is intrusive (1) | Researchers will be dealing with de-identified data eventually (1) |
Acceptable depending on study (1) | |
Consent required when participants are experiencing mental health issues, as they may not welcome people delving into their affairs at that point in their lives (1) | Consent would have been given at data collection point (1) |
Information given to WorkCover can be shared with researchers, as it was given confidentially (1) | |
Consent should be sought for all research (1) | Retrospective use of data does not require consent (1) |
Consent should be sought at initial point of data collection (1) | People have inflated view of how interesting they are to others (1) |
Collecting this kind of information without consent may not be legal (1) | |
It is very good to obtain consent if it is simple to do so (1) |