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Table 1 Focus group interview guide

From: Participatory improvement of a template for informed consent documents in biobank research - study results and methodological reflections

Topic

Questions – focus groups: set one and two

First impression of text

Free description; no further guiding questions

Knowledge and Understanding

 − What is the central message of the text?

 − How understandable is the text?

 − Which topics did you find difficult to understand?

Coverage of relevant information

Please imagine you had to decide whether or not to donate to a biobank.

 − How helpful is the text for your decision?

 − What additional information would you like to have?

 − What questions remain?

Readability and Structure

 − How easy or difficult was it for you to read the text?

 − What do you think about the length of the text?

 − How do you assess the structure of the text?

 − Do the headings of each paragraph properly describe their content?

Trust/credibility

 − Do you trust the information given in the text?

 − What makes you trust/distrust certain pieces of information?

Suggestions for revision

 − What suggestions do you have to improve the text?

Additional feedback

Open question; no further guiding questions