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Table 1 Summary of consents in the GS resource at baseline (2006–2011) and added subsequent to the end of participant recruitment in 2011

From: Balancing the local and the universal in maintaining ethical access to a genomics biobank

Dataset

Date in GS

Participant numbers

Participants recruited

2006–2011

24,084

Participants with consent and mechanism for record linkage

2006–2011

22,014

Participants with consent and mechanism for recontact

2006–2011

21,992a

Participants with consent for sample transfer ex-UK

2012–2013

11,255

Participants with consent for recontact by email

2016

6546

  1. aThis figure includes 785 participants known to have died since participation in GS