Table 2 Sharing of material and data
From: Consenting for current genetic research: is Canadian practice adequate?
a: Sharing of material and data | In relation to secondary use | Total | |||||
|---|---|---|---|---|---|---|---|
NA | No | Not explicitly | Yes | ||||
Sharing material and/or data | No | 10 | 1 | 0 | 0 | 11 | |
Yes | 0 | 5 | 2 | 19 | 26 | ||
Total | 10 | 6 | 2 | 19 | 37 | ||
b: Sharing | Material separated from data? | Total | |||||
Material only | NA | No | Yes | ||||
No | 0 | 11 | 0 | 0 | 11 | ||
Yes | 7 | 0 | 4 | 15 | 26 | ||
Total | 7 | 11 | 4 | 15 | 37 | ||
c: REB in sharing material/data | REB mentioned | Total | |||||
NA | No | Yes | |||||
Sharing material and/or data | No | 11 | 0 | 0 | 11 | ||
Yes | 0 | 18 | 8 | 26 | |||
Total | 11 | 18 | 8 | 37 | |||
d: Particularities on sharing of material and/or data | Frequency | Percent | Valid percent | Cumulative percent | |||
Valid | Data sharing is mentioned on an application/checklist form | 1 | 2.7 | 2.7 | 2.7 | ||
Information to researcher | 1 | 2.7 | 2.7 | 5.4 | |||
NA | 10 | 27.0 | 27.0 | 32.4 | |||
No | 22 | 59.5 | 59.5 | 91.9 | |||
Possibilities on sharing samples and or data among private entities and academic institutions | 1 | 2.7 | 2.7 | 94.6 | |||
Withdraw of tissue is separated from data | 1 | 2.7 | 2.7 | 97.3 | |||
Types of data bases (public/open and close) are defined | 1 | 2.7 | 2.7 | 100.0 | |||
Total | 37 | 100.0 | 100.0 | ||||