# | Amended statement | Accept (n = 12) | Reject (n = 12) |
---|---|---|---|
7 | Professionals involved in consent processes related to data sharing and data-intensive research have the responsibility to balance potential benefits and risks. A trained designate should be available to discuss these with parents at the time of consent | 9 (75%) | 3 (25%) |
10 | Anonymized pediatric data should be made available via publicly accessible databases | 6 (50%) | 6 (50%) |
11 | Identifiable pediatric genomic and associated data should be coded and made available through a controlled or registered access process | 6 (50%) | 6 (50%) |
12 | Providing children and their families the opportunity to share their genomic and associated data is an obligation of researchers | 5 (42%) | 7 (58%) |
13 | Incidental (secondary) findings of clinically actionable, validated genomic results should be made available | 8 (67%) | 4 (33%) |