Strongly agree + agree | Neutral | Strongly disagree + disagree | |
---|---|---|---|
IFs from genome studies should be made available to research participants? | 77 (68.1) | 23 (20.4) | 13 (14.5) |
Research participants should have a choice on what IFs are disclosed to them? | 81 (71.6) | 18 (15.9) | 14 (12.4) |
Research participants alone should make the decision on what IFs are disclosed to them? | 61 (55) | 27 (24.3) | 23 (20.7) |
I can decide what IFs are disclosed to research participants (e.g. only serious and treatable conditions)? | 36 (31.9) | 29 (25.7) | 48 (42.4) |
Research participants have the right to make decisions about receiving IFs if they have no prior knowledge or family history of the conditions listed? | 61 (55) | 27 (24.3) | 23 (20.7) |
I can override the research participant’s wishes if they consider it is not in their best interest to disclose a particular IF? | 36 (31.9) | 29 (25.6) | 48 (42.5) |
I can override the research participant’s wishes if they consider it is not in the best interest of their family members to disclose a particular IF? | 35 (31) | 34 (30.1) | 44 (38.9) |
I have no obligation to return Ifs | 36 (31.9) | 39 (34.5) | 38 (33.6) |