Participant characteristic | n = 50 (%) |
---|---|
Length of time involved in research (years) | |
0–5 | 14 (28%) |
6–10 | 9 (18%) |
11+ | 26 (52%) |
Other | 1 (2%) |
Geographical location | |
England | 18 (36%) |
Wales | 28 (56%) |
Scotland | 0 |
Northern Ireland | 0 |
Other | 4 (8%) |
Ethnicity~ | |
White | 48 (96%) |
Asian/Asian British | 1 (2%) |
Mixed/Multiple ethnic groups | 0 |
Black/African/Caribbean/Black British | 1 (2%) |
Other ethnic group | 0 |
Stakeholder group | |
Researcher with an interest in capacity-affecting condition(s) | 23 (46%) |
HCP* caring for people with capacity-affecting conditions | 8 (16%) |
Researcher with an interest in advance planning | 6 (12%) |
Research ethics committee member | 2 (4%) |
Researcher with an interest in ethics and law | 1 (2%) |
Other | 10 (20%) |
Role includes approaching participants about research | |
Yes | 34 (68%) |
No | 15 (30%) |
Other | 1 (2%) |
Role includes advance planning activities | |
Yes | 15 (30%) |
No | 32 (64%) |
Other | 3 (6%) |
Area of interest^ | |
Dementia | 24 (48%) |
Parkinson’s disease | 2 (4%) |
Stroke | 7 (14%) |
Palliative or end of life care | 16 (32%) |
Huntington’s disease | 3 (6%) |
Other | 11 (22%) |