Table 3 Public stakeholders’ willingness to participate in research by study type
I would be willing to be included in a research study that involves$ | Strongly agree | Agree | Neither disagree nor agree | Disagree | Strongly disagree |
|---|---|---|---|---|---|
a) Asking me questions in a survey or interview (e.g. asking about my experiences or opinions) | 178 (64%) | 85 (31%) | 5 (2%) | 8 (3%) | 1 (0.4%) |
b) Observing my behaviour (e.g. watching how I act if I listen to music) | 152 (55%) | 104 (38%) | 14 (5%) | 6 (2%) | 1 (0.4%) |
c) Testing my memory or thinking (e.g. asking me to draw a picture or remember specific words) | 173 (62%) | 92 (33%) | 7 (3%) | 4 (1%) | 1 (0.4%) |
d) Giving me psychological therapy (e.g. counselling for anxiety or depression) | 136 (49%) | 93 (34%) | 31 (11%) | 12 (4%) | 5 (2%) |
e) Giving me physiotherapy (e.g. moving my arms or legs, massaging my muscles) | 155 (56%) | 89 (32%) | 24 (9%) | 8 (3%) | 1 (0.4%) |
f) Giving me experimental medicine (e.g. a drug that might help my condition) | 75 (27%) | 106 (38%) | 61 (22%) | 22 (8%) | 13 (5%) |
g) Taking x-rays or scans of my body (e.g. to help researchers see how my condition is affecting my brain) | 155 (56%) | 97 (35%) | 17 (6%) | 5 (2%) | 3 (1%) |
h) Taking measurements about my body (e.g. my weight, blood pressure) | 171 (62%) | 96 (35%) | 6 (2%) | 4 (1%) | 0 (0%) |
j) Putting something on my body, like a bracelet, that keeps track of information (e.g. how much time I spend in bed) | 152 (55%) | 98 (35%) | 17 (6%) | 10 (4%) | 0 (0%) |
k) Taking a sample of my blood or other body fluid for genetic research (e.g. to find out if I and my relatives have a gene that increases the risk of getting dementia) | 162 (58%) | 92 (33%) | 11 (4%) | 7 (3%) | 5 (2%) |
l) Taking a sample of my blood or other body fluid for non-genetic research (e.g. to find out if my blood shows I had an infection in the past that increases my risk of a condition) | 164 (59%) | 92 (33%) | 11 (4%) | 6 (2%) | 4 (1%) |
m) Looking at my personal records, such as medical records or test results held at my GP practice or hospital (e.g. to study how a past illnesses might be related to my condition) | 167 (60%) | 94 (34%) | 12 (4%) | 1 (0%) | 3 (1%) |
n) Accessing stored samples of my blood, body fluids or other tissues (e.g. If I had blood taken in the past for another reason, researchers might ask the hospital for access to that blood for study) | 165 (60%) | 91 (33%) | 13 (5%) | 4 (1%) | 4 (1%) |