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Table 1 Respondent characteristics

From: Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study

 

Round 1 (n = 21, 100%)

Rounds 2 and 3 (n = 18, 86% retention from Round 1)

Site

 A

15 (71%)

12 (67%)

 B

1 (5%)

1 (6%)

 C

5 (24%)

5 (28%)

Prior research experience

 Yes

4 (19%)

2 (11%)

 No

13 (62%)

12 (67%)

 Not sure or don’t remember

4 (19%)

4 (22%)

Age

 18–24

2 (10%)

2 (11%)

 25–34

3 (14%)

3 (17%)

 35–44

7 (33%)

5 (28%)

 45–54

2 (10%)

2 (11%)

 55–64

3 (14%)

2 (11%)

 65–74

3 (14%)

3 (17%)

 75 or older

1 (5%)

1 (6%)

Gender identity

 Male

3 (14%)

2 (11%)

 Female

16 (76%)

15 (83%)

 Other: Trans man, Terran

2 (10%)

1 (6%)

Race/ethnicity

 Asian

2 (10%)

2 (11%)

 Black or African American

4 (19%)

3 (17%)

 White or European American

11 (52%)

11 (61%)

 Hispanic/Latino(a)

1 (5%)

1 (6%)

 Selected > 1 category

2 (10%)

1 (6%)

 Unknown/none of these fully describe me

1 (5%)

0 (0%)

Annual household income

 Less than $20,000

6 (28%)

5 (28%)

 $20,000 to $39,999

7 (33%)

5 (28%)

 $40,000 to $59,999

2 (10%)

2 (11%)

 $60,000 to $79,999

0 (0%)

0 (0%)

 $80,000 to $99,999

3 (14%)

3 (17%)

 $100,000 to $139,999

1 (5%)

1 (6%)

 $140,000 or more

2 (10%)

2 (11%)

Highest level of education

 High school diploma or the equivalent such as GED

2 (10%)

2 (11%)

 Trade or vocational school such as Beauty School or Electrical School

3 (14%)

2 (11%)

 Some college

4 (19%)

3 (17%)

 Associate’s degree or a two-year college degree

2 (10%)

2 (11%)

 Bachelor’s degree or a four-year college degree

5 (24%)

4 (22%)

 Master’s degree

3 (14%)

3 (17%)

 Advanced degree such as a PhD, a Law degree, or a Medical degree

2 (10%)

2 (11%)

Health insurance

 Yes, public insurance, including Medicaid, Medicare, or other government-based plans

11 (52%)

9 (50%)

 Yes, private insurance, including employer-based, direct-purchased, or TRICARE or other military insurance

8 (38%)

7 (39%)

 Yes, other

1 (5%)

1 (6%)

 Unknown

1 (5%)

1 (6%)

Likelihood of joining a cancer research study

 Not at all or a little likely

1 (5%)

1 (6%)

 Somewhat likely

6 (29%)

6 (33%)

 Very or extremely likely

14 (67%)

11 (61%)