Table 3 Round 3 final rankings
Respondents (n = 18; rankings based on n = 16 who spent > 1 min on the ranking task) rated 8 items from 1 = most important to 8 = least important | ||
|---|---|---|
To feel respected as a research participant, it would be important to me that the… | Mean ranking (standard deviation) | Median ranking (range; Q1, Q3) |
research staff thoroughly describe the research study so I can decide whether to join | 2.6 (2.1) | 1.5 (1–7; 1, 3.5) |
research staff show kindness, patience, non-judgment, and interest in me as a person | 2.8 (1.8) | 2 (1–7; 1, 4) |
research staff have a specific person I can contact with questions | 4.3 (1.8) | 4 (1–8; 3, 6) |
research staff check in with me to make sure I understand what I would be asked to do in the research study | 4.3 (2.1) | 4 (2–8; 2.75, 5.25) |
study have research staff or interpreters who speak my language | 4.7 (2.7) | 4.5 (1–8; 2, 8) |
research staff give me the results of my genetic testing | 5.3 (1.6) | 5.5 (3–8; 4, 7) |
research staff tell me about the overall research study findings | 5.9 (1.7) | 5.5 (2–8; 5, 7.25) |
research staff provide timely reminders and follow-ups | 6.1 (1.4) | 6.5 (3–8; 5.75, 7) |