Table 3 Importance of various modifiable factors for the release of genomic data
From: Public attitudes towards genomic data sharing: results from a provincial online survey in Canada
Item | Not at all Important (1) (%) | 2 (%) | 3 (%) | 4 (%) | Very Important (5) (%) | Mean | SD |
|---|---|---|---|---|---|---|---|
Considerations for granting access to genomic and clinical information for research purposes | Â | Â | |||||
Where the researchers were from (n = 697) | 32.3 | 10 | 16.4 | 13.5 | 27.8 | 2.9 | 1.6 |
Whether I had the ability to withdraw my data at any time (n = 695) | 7.8 | 5.5 | 14.1 | 18.6 | 54.1 | 4.1 | 1.3 |
Whether the research had ethics approval and oversight (n = 697) | 1.4 | 0.6 | 3.7 | 9.8 | 84.5 | 4.8 | 0.7 |
Whether the research was done by a private company (n = 692) | 10.8 | 4.5 | 21.4 | 18.2 | 45.1 | 3.8 | 1.3 |
Whether the research had an ethics or privacy officer in place (n = 697) | 1.4 | 1.9 | 9.2 | 18.8 | 68.7 | 4.5 | 0.9 |
Whether profits could be made from research using my sample (n = 695) | 7.8 | 4.7 | 16.1 | 14 | 57.4 | 4.1 | 1.3 |
Whether my sample could be traced back to me (696) | 5.6 | 1.7 | 9.6 | 12.5 | 70.5 | 4.4 | 1.1 |