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Table 2 Coding framework for analysis (early codes in standard font; later codes in italic)

From: Layered vulnerability and researchers’ responsibilities: learning from research involving Kenyan adolescents living with perinatal HIV infection

Main themes

Codes

1. Forms/impacts of challenges and support at INDIVIDUAL level

• Physical health

• Individual attitudes & knowledge around HIV/AIDS

• Individual risk behaviours

2. Forms/impacts of challenges and support AT HOME

• Economic issues

• Family attitudes & relations (inc external stigma, family taking drugs openly together), including guardianship/orphans

• Friends/peer group at home/community

Supporting adherence

3. Forms/impacts of challenges & support at CCC/MOH

• Policy level influences

• CCC staff attitudes and communication

• Accessing CCCs

• Perceptions of quality of services

• Waiting/timing of clinics

• Youth friendly services

• Recommendations for clinics

• External agencies supporting CCCs

Choosing/changing clinics

Travelling long distances to clinic

4. Forms/impact of challenges & support at school

• Policies impacting ALHIV at school

• Choosing types of school

• Staff attitudes & actions

Stories of lack of privacy to take drugs, and impact

Fear of unwanted disclosure including boarding schools

Attending CCC/clinics from school

Impact of HIV / challenges and support on schooling

5. Policy level influences (areas)

• Pregnancy support/adherence in pregnancy/other

• Disclosure in family/for child

• Family counselling/ emotional support/practical support/ mentor mothers

• Messaging to ALHIV e.g. contraception/sex

• HW training

Friends/peer group/champions support/boot camps

Agencies working together

6. Research participation

• Making decisions about participation

• Reasons for joining/staying

• Understanding/remembering AHOS

• Challenges for ALH in attending AHOS clinics

• Participating over time

• Recommendations for research (pos & neg)

• Community perceptions research/KEMRI/AHOS

Teen-parent dynamics

Being accompanied

Ensuring privacy

Supportive staff attitudes

Enjoying research activities

Ethical challenges and strengths around informed consent processes

7. Vulnerability & resilience: Illustrative accounts and ongoing impacts – drawing on findings on ‘support’ and ‘challenges’ across earlier themes

How and why vulnerability/resilience emerge across the data through cascades/processes

Ways in which agency can be constrained/bounded, relationship to vulnerability cascades

Role of supportive individuals in promoting resilience/countering vulnerability