Table 1 Database Search Terms

Medline

(((MH “Qualitative Studies”)) OR qualitative OR ((MH “Qualitative Studies”)) OR ((MH “Semi-Structured Interview”) OR (MH “Structured Interview”) OR (MH “Unstructured Interview”) OR (MH “Interviews”)) OR ((MH “Thematic Analysis”)) OR (“Mixed Method*”) OR “Interview*” OR “thematic” OR “theme*” OR narrative OR ((MH “Grounded Theory”)) OR (“Grounded Theory”) OR “observation” OR “ethnograph*” OR “phenomenolog*” OR ((MH “Ethnographic Research”)) OR ((MH “Phenomenology”))) AND ((((MH “Trisomy 13”)) OR ((MH “Trisomy 18”)) OR ((“trisomy 18” OR “edwards syndrome”)) OR ((“trisomy 13” OR “patau syndrome”))) AND ((((MH “Life Experiences”)) OR ((MH “Decision Making”)) OR ((MH “Palliative Care”)) OR ((MH “Quality of Life”)) OR ((MH “Genetic Screening”)) OR ((MH “Hope”)) OR ((MH “Motivation”)) OR ((MH “Parental Attitudes”) OR (MH “Parents”)) OR ((MH “Family”)) OR ((MH “Prenatal Care”) OR (MH “Prenatal Diagnosis”)) OR ((MH “Noninvasive Prenatal Testing”)) OR ((MH “Perinatal Care”)) OR ((MH “Infant Mortality”)) OR ((MH “Intensive Care Units, Neonatal”)) OR ((MH “Postnatal Care”)) OR ((MH “Ethics”) OR (MH “Ethics, Medical”) OR (MH “Ethics, Nursing”)) OR ((MH “Bioethics)))

Embase

(((MH “Qualitative Studies”)) OR qualitative OR ((MH “Qualitative Studies”)) OR ((MH “Semi-Structured Interview”) OR (MH “Structured Interview”) OR (MH “Unstructured Interview”) OR (MH “Interviews”)) OR ((MH “Thematic Analysis”)) OR (“Mixed Method*”) OR “Interview*” OR “thematic” OR “theme*” OR narrative OR ((MH “Grounded Theory”)) OR (“Grounded Theory”) OR “observation” OR “ethnograph*” OR “phenomenolog*” OR ((MH “Ethnographic Research”)) OR ((MH “Phenomenology”))) AND ((((MH “Trisomy 13”)) OR ((MH “Trisomy 18”)) OR ((“trisomy 18” OR “edwards syndrome”)) OR ((“trisomy 13” OR “patau syndrome”))) AND ((((MH “Life Experiences”)) OR ((MH “Decision Making”)) OR ((MH “Palliative Care”)) OR ((MH “Quality of Life”)) OR ((MH “Genetic Screening”)) OR ((MH “Hope”)) OR ((MH “Motivation”)) OR ((MH “Parental Attitudes”) OR (MH “Parents”)) OR ((MH “Family”)) OR ((MH “Prenatal Care”) OR (MH “Prenatal Diagnosis”)) OR ((MH “Noninvasive Prenatal Testing”)) OR ((MH “Perinatal Care”)) OR ((MH “Infant Mortality”)) OR ((MH “Intensive Care Units, Neonatal”)) OR ((MH “Postnatal Care”)) OR ((MH “Ethics”) OR (MH “Ethics, Medical”) OR (MH “Ethics, Nursing”)) OR ((MH “Bioethics)))

CINHAL

(((MH “Qualitative Studies”)) OR qualitative OR ((MH “Qualitative Studies”)) OR ((MH “Semi-Structured Interview”) OR (MH “Structured Interview”) OR (MH “Unstructured Interview”) OR (MH “Interviews”)) OR ((MH “Thematic Analysis”)) OR (“Mixed Method*”) OR “Interview*” OR “thematic” OR “theme*” OR narrative OR ((MH “Grounded Theory”)) OR (“Grounded Theory”) OR “observation” OR “ethnograph*” OR “phenomenolog*” OR ((MH “Ethnographic Research”)) OR ((MH “Phenomenology”))) AND ((((MH “Trisomy 13”)) OR ((MH “Trisomy 18”)) OR ((“trisomy 18” OR “edwards syndrome”)) OR ((“trisomy 13” OR “patau syndrome”))) AND ((((MH “Life Experiences”)) OR ((MH “Decision Making”)) OR ((MH “Palliative Care”)) OR ((MH “Quality of Life”)) OR ((MH “Genetic Screening”)) OR ((MH “Hope”)) OR ((MH “Motivation”)) OR ((MH “Parental Attitudes”) OR (MH “Parents”)) OR ((MH “Family”)) OR ((MH “Prenatal Care”) OR (MH “Prenatal Diagnosis”)) OR ((MH “Noninvasive Prenatal Testing”)) OR ((MH “Perinatal Care”)) OR ((MH “Infant Mortality”)) OR ((MH “Intensive Care Units, Neonatal”)) OR ((MH “Postnatal Care”)) OR ((MH “Ethics”) OR (MH “Ethics, Medical”) OR (MH “Ethics, Nursing”)) OR ((MH “Bioethics)))

Scopus

(TITLE ((trisomy 13) OR (trisomy 18) OR (edwards AND syndrome) OR (patau AND syndrome)) OR ABS ((trisomy 13) OR (trisomy 18) OR (edwards AND syndrome) OR (patau AND syndrome)) AND TITLE ((personal AND experience) OR (lived AND experience) OR (family AND coping) OR (decision AND making) OR (palliative AND care) OR (quality AND of AND life) OR (genetic AND testing) OR (moral AND experience) OR (medical AND intervention) OR (hope) OR (goal) OR (motivation) OR (parent*) OR (famil*) OR (prenatal) OR (perinatal) OR (neonatal) OR (postnatal) OR (ethic*) OR (bioethic*) OR (life AND experience*) OR (genetic AND screening) OR (infant AND mortality) OR (life AND change AND event*)) OR ABS ((personal AND experience) OR (lived AND experience) OR (family AND coping) OR (decision AND making) OR (palliative AND care) OR (quality AND of AND life) OR (genetic AND testing) OR (moral AND experience) OR (medical AND intervention) OR (hope) OR (goal) OR (motivation) OR (parent*) OR (famil*) OR (prenatal) OR (perinatal) OR (neonatal) OR (postnatal) OR (ethic*) OR (bioethic*) OR (life AND experience*) OR (genetic AND screening) OR (infant AND mortality) OR (life AND change AND event*)) AND TITLE ((qualitative) OR (mixed AND method*) OR (interview*) OR (thematic*) OR (theme*) OR (narrative) OR (grounded AND theory) OR (observation) OR (ethnograph*) OR (phenomenolog*)) OR ABS ((qualitative) OR (mixed AND method*) OR (interview*) OR (thematic*) OR (theme*) OR (narrative) OR (grounded AND theory) OR (observation) OR (ethnograph*) OR (phenomenolog*)))