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Table 4 Coding Scheme

From: “She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis

Codes

Definitions

Choices

Discussions or references to barriers or facilitators to making decisions between a range of choices.

Moral Beliefs

Discussions of beliefs or wishes that have a connection to an individual’s sense of good/bad, just/injustice, fair/unfairness.

Information

How information is shared, learned, delivered, or represented.

Differing Perceptions

Discussions or references to parties differing on a way of regarding, understanding, or interpreting something significant.

Life

Discussions or references to what makes a life valuable.

Parenthood

Discussions or references to what it means to be a good/bad parent.

Family

Discussions or references to the significance of family.

Support

Discussions or references to supportive actions or expressions.

Influence

Discussions of parties’ capacity to influence the character, development, or behaviors of someone or something.

Agency

Observed expressions of agency (action or intervention, especially such as to produce a particular effect).

Trust

Discussions of references to beliefs in the reliability, truth, ability, or strength of someone or something.

Names

References to the importance of using the names of individuals.

Pride

Discussions where parents express pride in their child or parenting.

Disruption

Discussions of circumstances where individuals express a disruption to meaningful aspects of their life.

Hope

Discussions or references to hope.

Home

Discussions or references to the significance of being with their child at home, or bringing their child home.